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• Related Meetings
• Academic Sites
• Clinical Trial Information
  The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. Before searching, you may want to learn more about clinical trials and more about this Web site. Check often for regular updates to ClinicalTrials.gov. 
• Food & Drug Administration
  • FDA-CBER
    U.S. Food and Drug Administration - Center for Biologics Evaluations and Research Web Site
• Center for Fetal Monkey Gene Transfer for Heart, Lung, and Blood Diseases
  
• National Institutes of Health
  • Gene Therapy Resource Program (NHLBI)
  • National Bioethics Advisory Committee (NBAC)
    Draft Report:  Ethical and policy issues in research involving human participants
  • National Cancer Institute - Cancer Trials
  • NCI Cancer Facts
  • National Human Genome Research Institute
  • National Institute of General Medical Sciences: Research Topics Making Headlines
  • National Institutes of Health - Office of Biotechnology Activities (OBA)
    Information regarding referrals and information on specific gene trials are available here. 
  • New NIH Resource on Informed Consent (March, 2004)
• Office for Human Research Protections (OHRP)
  This site includes procedures for registering Institutional review Boards (IRBs)
• Journals and Periodicals
• Patient/Consumer Oriented Sites
• Professional Societies
• Glossary of Gene Therapy Terms
  The National Human Genome Research Institute (NHGRI) created the Talking Glossary of Genetic Terms to help people without scientific backgrounds understand the terms and concepts used in genetic research. Simply click on the term of interest to open a page with a wealth of information, including the term's pronunciation, audio information, images and additional links to related terms. Students, teachers and parents will find the glossary an easy-to-use, always available learning source on genetics.