Sites of Interest

The following Internet addresses contain information created, published, maintained, or otherwise posted by institutions or organizations independent of ASGT. ASGT does not endorse, approve, certify, or control these Internet addresses and does not guarantee accuracy, completeness, efficacy, timeliness, or correct sequencing of information located at such addresses. Use of any information obtained from such addresses is voluntary, and reliance on such information should only be undertaken after an independent review of its accuracy, completeness, efficacy, and timeliness.

Reference to any specific commercial product, process, or service by trade name, trademark, service mark, manufacturer, or otherwise does not constitute or imply endorsement, recommendation, or favoring by ASGT. 

Clinical Trial Information
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. Before searching, you may want to learn more about clinical trials and more about this Web site. Check often for regular updates to ClinicalTrials.gov. 

Gene Therapy Glossary of Terms
Terminology provided by ASGT

Human Genome Project Information
Provides basic information on what gene therapy is, how it works, the current status of gene theapy, and recent developments in the field of gene therapy.

National Human Genome Research Institute's Glossary of Genetic Terms
The National Human Genome Research Institute created a glossary of genetic terms to help people without scientific backgrounds understand the terms and concepts used in genetic research.

National Institute of General Medical Sciences - Extras on Newsmaking Research

National Institutes of Health - Office of Biotechnology Activities (OBA)
Since ASGT does not provide referrals or information on specific gene trials. Such information is available through the National Institutes of Health - Office of Biotechnology Activities (OBA)

NCI Cancer Facts: Questions and Answers About Gene Therapy
FAQ oriented toward patient information.

National Institute of General Medical Sciences: Genes—What We Knew, Know, and Hope to Learn Fact Sheet

The ALS Association

American Cancer Society

Cancer Cure Coalition

Cooley's Anemia Foundation

Cystic Fibrosis Foundation

Families of Spinal Muscular Atrophy

Fanconi Anemia Research Fund, Inc.

Fight SMA

The Leukemia & Lymphoma Society

Muscular Dystrophy Association

March of Dimes

National Hemophilia Foundation

National Parkinson Foundation

Oligonucleotide Therapeutics Society (OTS)

Parkinson's Disease Foundation

Spinal Muscular Atrophy Foundation

The Stop ALD Foundation

World Federation of Hemophilia